Fighting Chronic Lyme Disease

For Patients

More people than I can remember have been pushing me for the longest time to publish this section. So here it is at last. A work in progress.

We who suffer from this disease and its co-infections know that no two patients are alike and the current belief is that the road to recovery (or remission) is a very individual path, and oftentimes a lonely one. As far as we know, there currently is no one treatment that seems to work 100% for everybody. Nevertheless, we need to support each other, share new ideas and revisit old ones, report what has worked for some and not for others, while looking out for each other to save us from potential harm and abuse. Having visited with over 140 doctors and talked to over 1000 patients, I owe it to our community to share my experiences, good and bad. Of course I should remind everyone that I am not a qualified doctor and therefore yada yada yada… even though many licensed doctors still do ask me for advice (LOL). I’m honored to be able to help them.

It is my goal in this section of the website to focus not just on treatments and protocols I’ve dealt with, but also to share some practical advice for daily living that has made life a little more comfortable for me personally. I hope some of these pointers will help you too. Here are my entries to date:
Dealing with Medical Insurance  (or perhaps this should read, “did you really think fighting Lyme was the only battle on your plate?” 🙂 )

"In the fullness of time, the mainstream handling of Chronic Lyme Disease will be viewed as one of the most shameful episodes in the history of medicine."
Kenneth B. Liegner, MD
Board Certified Internist + training in Pathology and Critical Care Medicine / NY